Monday, July 30, 2007

Boost the Bev and not the 'Beasties"

Today Beverley's counts continue to be strong. She came off the poppy juice on Sunday morning except for what is euphemistically termed a "rescue" dose. (If the pain becomes too tough, you press a button and float away for a while.) Freed from the drip-drip-drip of the narcotic she was much brighter, speaking crisply and -sadly - devouring tabloid details of the wedding of Dolores Duodenum and Harvey Heterohernia. ( Sorry after two weeks in this place everything sounds like a body part or a drug!) She also consumed her first non-hospital nutrition in the form of 6 ounces of strawberry flavoured "Boost" . Last year this -and chicken noodle soup with the noodles removed- proved to be her favourite post-transplant beverage prior to the onset of "Gin." Having had very little real -hallucination free- sleep for several days, yesterday's -relatively-normal human activity following the withdrawal of the poppy extract usually leads to a day or so of really deep natural sleep and today (Monday) we are seeing that. We watched this scene unfold last August, so we are happy to wait until she is 'slept out.' At the present moment (Monday 12noon) we are still waiting detailed results from Beverley's Friday bronchoscopy. She is still breathing oxygen but this has been reduced by half from Friday's supply and my wristwatch tells me that her breathing rate is down by a half from Friday. She is not coughing at all and so we are hopeful that whatever the lung problem was at the end of last week is subsiding. Certainly the cultures from the bronchoscopy have not shown any signs of an infection at this stage-although there are more long term culture results still to come.

On this matter of fungal infections - and as previewed by Tom- todays scientific sermon will focus on the contribution of women's hair care to the incidence of fungal infections. As a parent and scientist with a daughter at risk of lung infection I feel it my duty to speak out ! Among the possible 'bugs' that can infect patients -especially in the lungs-following stem cell transplants are fungi and yeasts like Aspergillus and Nocardia (Hamadani M, Benson DM Jr, Blum W, Garzon R, Devine S., Pulmonary Nocardia and Aspergillus co-infection in a patient with chronic graft-versus-host disease.
Transpl Infect Dis. 2007 Jul 25; [Epub ahead of print]) (Dont rush-Read it later)

Now consider the changes in women's hair care products in recent years and you will notice that the main commercial thrust has been to ensure that they are stuffed with enough exotic 'nutrients' to feed the bugs of the world and - most importantly for my thesis- to ensure that the residue of these products left behind in the shower should look to a bug like the remains of a banquet ! Fish proteins, acacia honey, marmoset milk, frog proteins, pork scratchings, albumen, jojoba oil, beeswax, coconut oil, yak butter, oil of ole', wheat bran, green salad, corn syrup, mango extract, whale oil and larks tongues are but a sample of what you girls will smother over your scalp to get that 'lustre' on your locks. Meanwhile down on the shower floor and along the tiles the bugs are building ! Smacking their microbial lips and multiplying as never before in the old 'carbolic ' days. Once upon a time you washed your hair with a real soap made from pure unaldulterated lard, whose principal additive was a phenol derivative guaranteed to put the fear of extinction into any bug. Now the shampoo slogans should read "Guaranteed to promote the growth of 99.9% of known germs !!!!" Soooo... in the showers and bathrooms of the world that black line between the tiles and those black patches on the curtain and on the ceiling are, I submit, the visible form of a massive invasion by the force- the 'Fungal Force !' Fling away your fancy formulas girls - you have nothing to lose but your fungi !

The Dad

7 comments:

Rachel Myer said...

Hello all and especially Bev,

This comes with love from a virgin fen-edge 'blogger' and am currently not sure if this will reach you or be hurled around cyberspace just above Chatteris!...

So pleased to hear that lungs are looking better and fungi being kept at bay. I have intend to srcutinise bathroom for general infestations due to haircare products and vow to switch to carbolic only ablutions as soon as Clarins bring it to the mainstream.

Your days, blogs, humour and downright strength is incredible to read from over the seas.

Hears to you all, Selfs, Ellars and those clever souls in charge of medical proceedings.

If this works will blog again soon

Love Rachel

MalcolmA said...

Dear Lord, I had no idea. I am guilty! Guilty I say! I use the organic products loaded with all the stuff dad put on his list- eek! I was blaming the blck fungusy stuff on my flatmates lack of cleaning but now I see it is clearly my fault. So glad to hear about the lungs clearing, counts rising, poppy reducing, heavy sleeping boost enjoying days there. Keep up the good healing girl! Byt he way, yesterday I had my ipod on shuffle (3000+) songs and Bev, it played 3 Beth Orton songs within 20. Weird. She always reminds me of you- especially Central Reservation. Look forward to more good news! And if there is anything else I need to know about my beauty regime, please do tell... XX Trina

Anonymous said...

Bev, That was Trina not Malcolm. Oops. Using flatmate's computer.

Mom Self said...

Well, I was about to go to bed because I'm exhausted, but now I have to go scrub the shower. I just won't be able to sleep knowing there are thousands, maybe millions of fungi having a party in the shower. Yuk! And I'm going to the hairdresser tomorrow for my usual cut and color. May I should use Brewski's doggy shampoo!

And David, why doesn't your head explode with all that knowledge you've gathered over the years?
What kind of shampoo do you use??

Thanks for the updates, Tom. It's encouraging to know that she's doing better than last year. Bev probably knows more of the celeb current events even in her purple haze than the rest of us do who are fully awake.

Give her our love and we continue to pray for time to speed up and get this all over with. Can't wait to come see you when Dad arrives.

Love you! ;-) xoxoxo

Bigmac said...

Hi Bev

Glad to hear your diet is becoming more varied and that you are getting some restful sleep.

Hopefully you have enough "vital news" publications to keep you going - if not just let me know (although the UK ones are filled with Big Brother news which I refuse to buy on principle - surely it must be worse TV that anything the USA can throw at us).

Keep those counts climbing

Love

Ailis xx

Karen Kane said...

Hey there

Good news on the counts, the food, the sleep.....Very glad to hear!!Thinking about you everyday.
My love to you all

kk

Anna Novick said...

BEV BEV BO BEV BANANA FANA FO FEV, very good to hear your news. I am doing ALL things to support the British: reading the new Harry Potter book AND going to the new Harry Potter movie.

Meanwhile in celebrity news, today at my home-away-from-home Starbucks, Karen made some very elaborate secret signs and mouthed excitedly that KEANU REEVES was at a corner table. We snuck a lot of looks and whispered about him for a good 30 minutes before he stood up and we saw....that it wasn't him. Ah well... we'll have to keep looking.

Thinking of you and sending lots of love--
--Anna

ps Karen says we didnt talk about him for THIRTY minutes...